March 2009



Seedy

Originally uploaded by bp6316

It happened again. This time I was at Home Depot, off in my own world looking at seed packets and dreaming about working in my butterfly garden this summer.

“Excuse me!”

I look up. A young woman with a clip board in hand smiles. “I’d like to ask you some questions. It will only take a minute. Can you tell me which room you plan to remodel next? Your bathroom or kitchen?”

“I’m not planning to remodel anything. Thanks.” I try to turn back to the seeds, but notice her staring at me, jaw agape.

“Not planning to remodel?!” she looks aghast as if I just told her I wasn’t planning to brush my hair ever again.

“Well,” she continues, “we’d like to send someone to your home, a decorator. You see many people think they aren’t planning to remodel, but after they see our decorators, they remember they want to remodel something. . .”

“Uh– well no thanks, I’m not interested in having a decorator out to my home.” I turn again, frustrated now that my summer reverie has been spoiled.

“Where are you from, anyway?” she asks.

“FROM?!” I hesitate. I know what’s coming next. “I’m from here.”

“No. . . I mean where are you FFRROMM??” Emphasis added. She’s certain I am not from here, or haven’t always been from here, or something.

(OK, OK– It’s true I was born in the midwest, but I moved to the Seattle area by age nine, and dropped the mild midwestern twang by age ten. No one has asked where I was from until the past few years when my hearing dipped into the severe-profound ranges.)

“I grew up just north of Seattle,” I say.

“OH!” she says in surprise, “You sound . . . different. . . like you have some kind of accent. . .” Her eyes squint suspiciously.

“Yeh– that’s because I’m practically deaf. I’m reading your lips.”

“OH MY GOD!” she exclaims, “That’s so COOL!”

(Riiight– I really, really wish she would go away now. I’m getting annoyed.) I stare over my glasses with my best ‘are-we-done-here?’ look.

This kind of thing happens just often enough that it bugs me, but not so often that it doesn’t catch me by surprise each and every time. I know I sound a little different. I can accept that. It’s part and parcel of being deaf. I do not mind being different. My hearing isn’t the only area where I stray from the norm. I could probably think of at least fifty ways I differ from others.

I turn back to the seeds.

And then it hits me. . . How boring gardens would be if all flowers were exactly the same.

Happy Almost Spring! :-)

Recently something happened that drove home the point how important it is to stay involved in your own medical treatment, rather than having total faith in your doctor.  I’ve been suffering from horrible migraines over the past decade, and they’ve been getting progressively worse by the year.  Doctors have diagnosed everything from heart murmur to small seizures in the brain as the possible cause.  The only treatments offered were drugs, drugs, and more drugs — none of which worked. 
It wasn’t until the suggestion of heart surgery coupled with an obvious lack of attention to my medical records that I realized yet another doctor didn’t have a clue how to treat my head.  (Yeah– this is the same guy who forgot I wore hearing aids five visits in a row– which might have been understandable if he didn’t looked into my ears each time, then ask that I remove the aids. . .)  Some of you may recall I took a bag of pills to my family physician over a year ago and asked that she refer me to another neurologist– one who would actually listen, rather than prescribe pill after pill.  
Initially I was happy with neurologist number two, but after five different prescriptions (at least they didn’t interact negatively with each other this time), I began to see the same old pattern.  This pill doesn’t work, let’s try THIS pill.  While it was nice to find something that helped the pain, what I really, really wanted was a CURE– a REASON behind the pain.  I figured my body was trying to tell me something with all that pain.  I also don’t like taking five pills every day.
 
Turns out I was right.   “Gee doc, this seems like a weird question but do you think the headaches might  have anything to do with that neck injury years ago?”  I seem to notice my head starts hurting after my neck gets really stiff.  What do you think of sending me to a PT?”
 
“A PT?  Why not just join an athletic club??”
 
“Because I can barely move my neck sometimes, it’s so stiff.” 
 
“Uh weeellll. . . you could try that. . . OR we might consider heart surgery to correct that gaping hole. . .blah, blah, blah. . .OR botox injected around the eye. . . blah, blah, blah”  (Theoretically botox injections sometimes work, but they’re still considered experimental by many insurance companies.)
 
What would YOU choose?  Keep in mind we had already discussed this surgery.  Curing the migraines with surgery wasn’t a sure thing.  Additionally, the heart murmur itself isn’t dangerous.  It’s only a theory that heart murmur can cause migraines.
 
“Thanks, I’ll think about it.”
 
I went back to my general practioner. . .
 
“Can you refer me to a PT who has some experience with neck injuries?  I just want to be sure my neck isn’t the culprit before having a heart surgery or botox treatments that may or may not cure my headaches.”
 
Four weeks into PT treatment, I’ve experienced less than half the headaches I normally get in a month and I’m off all medications.  When I do get headaches they are far less severe, and only last a couple hours with one pill rather than days of taking multiple pills.  Think we’re onto something here.  
 
I do daily neck stretching now and back strengthening excercises, plus I apply heat whenever I feel neck stiffness.  When I see the PT, HE applies heat as well, then ultrasounds the affected tendon, massages and manipulates my neck, then sticks me on a traction device that pulls the neck back into the correct position.  Sounds painful, but it’s actually relaxing.  I LOVE going there.  According to last Thursday’s measurements my neck movement is twice what it was at the beginning of February.  Plus I am experiencing far less pain in both head and neck.  I’ve learned that when my head starts to throb to apply heat to my neck and do some stretches.  I’ve been able to offset a headache that way on more than one occasion within the past month. 
I can also have a glass of wine now and then.  Something I haven’t been able to do in years due to the headache problem.
 
Why does this work?  Well the PT explained that the ligament connected to the two swollen disks that have been out of whack for twenty years ever since I was rear-ended twice within six months. . . that ligament is connected to the nerve that goes around my eyes.  This explains why it happens that when this ligament is sore I experience back pain and a stabbing cluster headache that feels like a knife has been stuck in my eye.  It is incredibly painful and the pain doesn’t go away even with morphine– which I discovered after gall bladder surgery last spring.  Yes– it’s THAT bad.  
 
But the amazing thing is that within three weeks of PT treatment– treatment I suggested– I’m nearly cured.  I haven’t felt this good in probably ten years.    
 
Lesson Learned– ask questions and trust your own instincts when it comes to your own body.  Sometimes surgery and drugs aren’t the answer.